Civil Society Engagement on TB Prevention and the Needs of Children with TB
Civil society has been – and continues to be – actively involved in every phase of the Tuberculosis and HIV response, across the continuum of care, from advocacy to service delivery, from policy to program design, implementation to monitoring and evaluation.
Given the tremendous diversity within civil society, meaningful engagement with civil society takes many forms. Countries, regions, and mandates of civil society groups widely vary.
Under IMPAACT4TB, the Treatment Action Group(TAG) is the lead partner in supporting global and national advocacy by civil society and community-based organizations to scale-up TPT and pediatric-TB interventions. TAG works with selected civil society organisations to undertake and support advocacy for TPT and pediatric TB at the global, regional, and national levels to bring together civil society partners from project countries to undertake targeted advocacy at national level aimed at introducing and scaling up 3HP, including for people living with HIV and children under the age of 5 years old.
These partners across our 12 countries work collectively with TAG and support other Consortium members:
The Brazilian Research Network NETWORK-TB Tuberculosis is a Non Governmental Organization (NGO) of private non-profit concerned with assisting in the development not only of new drugs, new vaccines, new diagnostic tests and new TB control strategies, but also the validation of these technological innovations, prior to its commercialization in the country and / or its implementation in TB control programs in the country.
Ghana National TB Voice Network was founded in 2007 with the support from Chest Clinic, Korle Bu Teaching Hospital. In 2013, with the support of the West Africa AIDS Foundation (WAAF) the network received capacity building to reform its intervention approach as a Community group. TB Voice Network is a network of people who have survived tuberculosis and affected by the disease and wish to share their experience with other infected patients with the hope of battling the negative consequences of TB.
KHANA (est. 1996) is a linking organization of the International HIV/AIDS Alliance and the largest national NGO providing HIV prevention, care and support services at the community level in Cambodia, as well as integrated sexual and reproductive health, family planning, maternal child health, TB and livelihoods programming.
Tanzania Network of Women Living with HIV and AIDS (TNW+) is a membership network established and run by HIV positive women from 4 NGOs and 19 CBOs. It is made of a strong membership of 55 WLHIV support groups reaching 1500 members in 12 districts of Tanzania Mainland. It was registered in May, 2006 as a Non-Governmental Organization with a registration S.O.NO.13146 as a first network of HIV positive women in Tanzania.
The STOP TB Partnership – Kenya is a movement of individuals and organizations from the Government of Kenya, corporate community, patient community and the people of Kenya for the elimination of tuberculosis (TB) and reduction of poverty-related diseases in Kenya. It mirrors the Global Stop TB Partnership, which is composed of donors, national and international organizations, government and non-governmental organizations, affected communities and academic institutions working together to reduce the toll of TB worldwide and ultimately achieve a world free of TB.
Kenguelekeze is an advocacy organisation based in Mozambique leading the advocacy campaign, “Speaking up to contributing in the scale-up of the tuberculosis preventive therapy (TPT) and in its policy change needed in Mozambique”.
Facilitators of Community Transformation (FACT), is a Non profit humanitarian organisation that strives to promote community development for sustainable national growth in Malawi. FACT is working in various communities across the country.
The Coalition of Women Living with HIV and AIDS in Malawi (COWLHA) was established in 2006. It unites different groups of women as a civil society force in dealing with issues on gender and women’s rights in the context of HIV and AIDS that impact on the lives of women living with HIV and AIDS in Malawi. COWLHA’s mandate specifically seeks to enhance the protection and promotion of rights of women living with HIV and AIDS. At the moment, the membership of the coalition stands at approximately 15000 women living with HIV.
ZNNP+ is the first network of PLHIV in Africa that led to the birth of other networks in the region. The organisation was established in 1992 and registered in 1999 (PVO 2/99), the network is a national umbrella body whose mandate is to represent and coordinate the interests of networks and support groups of PLHIV, with a membership of over 50 000 PLHIV. The organization operates in all the ten provinces and 65 districts of the country, with vibrant advocacy structures at ward, district, provincial and national level.
JHWO is a registered PVO. Founded in 2004 & registered first as a trust in 2010 and then as a PVO in September 2013. Its niche is advocacy against harmful norms and mitigating the impact thereof.