Civil Society Engagement

Civil Society Engagement on TB Prevention and the Needs of Children with TB

 Civil society has been – and continues to be – actively involved in every phase of the Tuberculosis and HIV response, across the continuum of care, from advocacy to service delivery, from policy to program design, implementation to monitoring and evaluation. Given the tremendous diversity within civil society, meaningful engagement with civil society takes many forms. Countries, regions, and mandates of civil society groups widely vary.  

Under IMPAACT4TB, the Treatment Action Group(TAG) is the lead partner in supporting global and national advocacy by civil society and community-based organizations to scale-up TPT and pediatric-TB interventions. TAG works with selected civil society organisations to undertake and support advocacy for TPT and pediatric TB at the global, regional, and national levels to bring together civil society partners from project countries to undertake targeted advocacy at national level aimed at introducing and scaling up 3HP, including for people living with HIV and children under the age of 5 years old. These partners across our 12 countries work collectively with TAG and support other Consortium members. 

ADVOCACY UPDATES – DECEMBER 2021

TAG relaunched an expression of interest (EOI) and identified an application procedure for CSOs from project countries to apply to participate in an intensive advocacy capacity strengthening through a TPT Fundamentals and Community Experts online course from TAG: May 2 – June 13, with 279 participants. Following the workshop, these CSO partners were invited to develop and submit advocacy proposals for small grant funding (see below). 9 new grantees were selected as part of the RFP process under TAG for the 2021/2022 Small Grants Cohort.

FACT + COWLHA – Malawi Policy implementation and 3HP access

•         Collaboration with Malawi CSO Network (made up of HIV, TB & HepC, LGBTI) & KNCV, partners put pressure on MoH after the halting of the 3HP programme due to the discovery of nitrosamine impurities in a few batches.
•         During COP21 negotiations, the organisation pressured the GoM to advise on the 3HP action plan as well as transparency in terms of what GF has procured.
•         After several meetings with the GoM as well as HIV/TB programmes, the Coalition, the MoH announced to continue the 3HP programme.

JAAIDS – Malawi Responsible reporting & storytelling

 

JAAIDS have developed Guides for journalists on responsible reporting on TPT; Collaborating with COWLHA to develop case studies of lived experiences on TPT by WLHIV

Sankalp Rehabilitation Trust – India Policy implementation

Advocating for integrated HIV /TB and harm reduction activities for people who use drugs (PWUDs); Undertaking research on TPT/3HP access to ensure evidence-based advocacy to build a case for PWUDS to access TPT & harm reduction packages.

ARK Foundation – India Policy implementation

Advocating for policy implementation of the new LTBI guidelines to include PWUDs who are HIV-positive and negative in Nagaland State.

DACASA – KenyaPolicy formulation & implementation

Involvement in Technical Working Group (TWG) to expedite 3HP implementation beyond the I4TB sites. Participating in GF & PEPFAR processes to demand TPT scale-up and inclusion of 3HP, as well as current drug stockouts in Kenya due to bureaucratic challenges with KEMSA and donors.

Pamoja TB Group – Kenya 3HP Accessibility

Kenya TB Network is advocating for access to TB and HIV medications
(which were held in Lamu port due to bureaucratic challenges) in the first half of 2021.

KHANA + CATA – Cambodia Policy change

Advocated towards finalisation of national LTBI Guidelines

Community-Led Monitoring (CLM)

Expansion of TPT into CLM One IMPACT tool funded by STOP TB Partnership.

ZNNP+ (Zimbabwe)Policy implementation

Collaborated with Ministry of Health to study appetite for integration of TPT into HIV Differentiated Service Delivery (DSD) models

3HP Accessibility Advocated for increased availability of TPT/3HP during PEPFAR COP20 & 21 negotiations.

Zimbabwe Young Positives (ZY+) – Zimbabwe3HP Acceptability

Focus Group Discussions (FDGs) held with youth to test appetite & document challenges; Youth-focused materials created to encourage TPT uptake and reduce HIV/TB stigma and discrimination faced by young people.

Ghana National TB Voices Network – Ghana Policy implementation

GNV is a GF SSR and have included TPT/3HP as part of their HIV/TB integration services. There have been challenges noted around TPT completion rates that the organisation advocates for with other partners.

West Africa AIDS Foundation (WAAF) – Ghana TPT monitoring

They have worked to ensure that the TPT uptake, monitoring and completion rates are improved and have documented barriers to TPT among PLHIV at ART clinics.

Muleide – Mozambique Research for evidence-based advocacy

Undertook budget-related research on the availability of TPT in Mozambique. The target is to direct advocacy toward MPs and MoH on accessibility and scale-up of 3HP.